Here’s our musing on what autism is, and how to visualise it, in terms of an autistic individual’s ‘being’.
Far too many clinicians and family members are confused about what autism is, and what autism looks like.
Autism is a neuro-developmental issue, and if a person was a tree, we could visualise their autism as the trunk of the tree – autism runs through the tree like a stick of rock, and it was there from the first time the roots began to grow.
The big branches could be significant co-existing conditions, such as Learning Disabilities, Fragile-X Syndrome and intellectual difficulties and disabilities. The smaller branches could be co-morbid conditions such as mental health challenges, anxiety, Sensory Processing Disorders, Obsessive Compulsive Disorder, etc.
The foliage is the individual autist’s personality and traits, and their ability to ‘mask’, or blend into a neurotypical world.
Why use this analogy? Because old-fashioned autism-related terms like ‘high functioning autism’ confuse the issue – hence, it’s not uncommon to come across individuals saying unhelpful things of autistic individuals, such as: ‘He/she doesn’t LOOK autistic; or ACT autistic’.
Autism – running through the core
This is because, an autist without issues like Learning Disabilities, Fragile-X Syndrome and intellectual difficulties and disabilities; e.g. someone who has so-called ‘high functioning autism’, or Asperger Syndrome; may not have the co-morbid conditions that give away the autistic way in which he/she understands and experiences the world. (With thanks to follower Ethan, for his comments/input.)
But autism is there, running through their core.
If we consider autism like this, it answers the question of why autism cannot always be seen; e.g. when a family member queries that their relative could be autistic, or when a teacher can’t see any issues, because the ‘foliage’ is masking the child’s feelings.
Do you agree? We’d love to hear your thoughts…
Interested in finding out more? Why not read our blog on the diagnostic criteria for autism?
A little disclaimer – here at Spectra.blog we don’t claim to be experts about Autism.
The information we post here is based purely on our own exposure and experiences.
Also published on Medium.
Beautiful analogy, and one I relate to. One thing, I don’t know if “inner autism” is a helpful phrase- I found myself thinking of rolling my eyes at it, and I am autistic. It felt wishy washy and not-real. Perhaps it could be phrased “their autistic way of understanding and experiencing the world”. Not quite as succinct but it reflects your statement that “Autism is a lifelong condition that affects how a person communicates with and relates to other people, and how they experience the world around them“ which has to be the best summary and explanation of autism I’ve yet seen.
Thanks Ethan! Good point about ‘inner autism’ – we have amended it as suggested. Thanks for your lovely feedback.
❤️
Hi there, I live in the U.K. and have 3 Children. My younger Teenagers are from a second relationship! My nearly 17 year old daughter seems to be affected the most from Asperger’s and is always saying and weirdly, that I probably gave her tge defected gene! Is there any way I can do a test free ( as I’m her Carer and unpaid) to find out so we can put this argument to rest.
Best regards
Sue xx
Hi Sue!
If you go via the NHS for an assessment, then it would be free.
They wouldn’t assess just because a child was autistic however; you’d need to show evidence of your own autistic signs, and likely explain how it would benefit you from being assessed.
It’s an interesting phrase, eg ‘defective gene’, as many people now prefer to see autism as a difference, like having green eyes, being a certain height etc.
Autism itself doesn’t mean mental health issues, learning differences etc – it is simply our body’s processor. Some autistics do have extra (co existing) issues that can be considered as disorders or disabling conditions, but the autism itself doesn’t tend to be considered ‘defective’. That’s the language and theory that this author believes, in any case! It’s different for everyone of course. Good luck in any case.